There are a few things "they" don't tell you when you have a sick child who happens to also be deaf.
When your deaf child has her CI (cochlear implant) off and wakes in the evening vomiting and calls for you, she can't hear you coming to help her.
When she wakes up at 11 pm in a dash to the toilet, she doesn't hear you race in behind her...she might feel the floor vibrate though.
"They" don't tell you, how you can not speak soothing words while they are vomiting. Heck, you can't even sign while you are holding hair back with one hand and rubbing a back with the other.
"They" don't tell you that if you don't have the signs for diarrhea, vomit and fever in your regular sloppy signing that you will need to get the implant out of the drying kit and replace the battery and put the whole dang contraption back on your child's head just so you can explain what the heck is going on with her poor little body.
"They" don't tell you that if you leave that BTE (behind the ear) on your daughter's ear you run the risk of having it end up in the bucket.
(No, this did not happen but it could.)
"They" don't tell you how hard it is to watch your sick gal and not be able to ease her discomfort with your words.
"They" can't tell you because most of the "they's" are not parents of deaf kids.
So, this sounds like a pity party but it's not.
I have had a rough day.
Hell, a rough week.
I am solo parenting this weekend, which makes the challenge all that more tough. However, I cling to the fact that mercies are new every morning and even though my deaf child, my beloved daughter, can not hear my words of comfort, she knows I am there, beside her, rubbing her back, putting her in the shower, changing her bedding and fetching her water.
She knows because the "I love you" sign is imprinted on her brain and because love is love, whether it is written, spoken or signed or all of the above.
Tonight, I am reminded, once again, of my Heavenly Father, because sometimes life seems like vomit and even though I can not hear, because I lack faith, (or whatever it may be) God is still there right beside me, hemming me in before and behind, gently rubbing my back and fetching my water.
What "they" don't tell you is that having a deaf child is a blessing and deafness can teach lessons that may not otherwise be taught.
Tonight's lesson is just one of many.